Dante’s mother had been advocating for him to receive occupational therapy services from the school, but had not been successful. OCRA helped prepare Dante’s mother for his upcoming IEP meeting. OCRA provided Dante’s mother with strategies, advice, and questions to ask related to his occupational therapy needs during the IEP meeting. Dante’s mother followed the advice OCRA provided and the IEP team agreed that Dante needed weekly 30-minute individual occupational therapy sessions at school.
Sam lived in locked institutional settings for much of his life. On his own, Sam filed a writ of habeas corpus, seeking his release from a developmental center. Although he was successful in his petition and won his release, his first community placement failed in part because the location and services were not a good match for his needs. Sam was again placed in a developmental center. OCRA and DRC’s regional office staff represented Sam at IPP meetings and advocated for an appropriate community placement and community-based services. A new enhanced behavioral home was developed in Sam
Raul needs supervision at all times and support with all of his daily living skills. Raul received some IHSS hours, but his mother questioned why he was not receiving the maximum 283 hours of IHSS per month. OCRA explained how Raul could meet the IHSS severely impaired standard and how to appeal the county’s decision. OCRA also explained the individual IHSS category definitions to Raul’s mother and showed her how to record his needs for each service in a weekly chart. Once Raul’s mother completed the chart and determined that he met the severely impaired standard, she appealed the denia
After successfully transitioning from a developmental center to community placement, Victor began attending a county special education high school transition program in accordance with the goals in his IEP. Victor initially did very well in his new program. However, following the school winter break, he experienced an illness and an increase in his aggressive behaviors. Victor had an inadequate school behavior plan, and as a result wound up missing months of school. OCRA represented Victor at a series of IEP meetings and requested additional assessments. Following a detailed transition
Reese had significant behavior issues when she lived in the community. The regional center eventually placed Reese in an IMD that was more than 150 miles away from her home community. The regional center notified OCRA of Reese’s IMD admission and provided OCRA with a copy of her comprehensive assessment. Reese stated clearly that she wanted to return to her community. While OCRA advocated for Reese to live in the least restrictive environment, the regional center attempted to relocate her to another IMD, which allowed outings into the community.
OCRA recently contributed to a community training forum that was attended by 100 medical professionals, social workers, and other service providers. OCRA is part of The Diversability Advocacy Network (DAN), a partnership made up of local organizations in northern California. DAN’s focus is to provide information regarding health care changes, the shift to managed care, and long-term services and supports (LTSS) in the local rural counties. DAN advocates on a systemic level for persons with disabilities and older adults to ensure that LTSS systems are accessible.
OCRA has worked closely with a large high school district over several years to educate families of transition-age regional center consumers about alternatives to conservatorship. The district representative shared that she has seen a shift in the attitudes of parents and staff about conservatorship as a result of OCRA’s outreach over the years. Parents and district staff shared that school psychologists speak of conservatorship as a routine or inevitable step for a young person with a disability.
Jocelyn has disability-related behavior incidents at school. Jocelyn’s teacher would send Jocelyn home early every day, which put her mother at risk of losing her employment. OCRA contacted the director of special education who was unaware that Jocelyn’s teacher was sending her home. The school district funded an independent functional behavior assessment by a qualified assessor and developed a positive behavior plan to assist Jocelyn with her behavior at school. Sending Jocelyn home will not be part of her plan.
All families must be prepared for their child to transition from the public school system into the adult world. The goal for any family is to ensure that their child is prepared for the future. For families with children with developmental disabilities it is very important to have the knowledge of what transition to adulthood means and what resources are available to help the child become as independent as possible.
Sean contacted OCRA after he went to pick up his medication prescription and found out he was no longer eligible for Medi-Cal benefits. OCRA assisted Sean in filing an appeal. The appeal stated that Sean had not received proper notice of the Medi-Cal termination and that even if the county determined that Sean was no longer eligible under his current Medi-Cal program, the county failed to review his eligibility for other Medi-Cal programs. OCRA negotiated with the county appeals specialist to show that Sean was eligible for Medi-Cal under the 250% Working Disabled Program.
Chin-Hae received Early Start services from the regional center before age three. When he turned three, his parents received a letter from the regional center telling them that he had aged out of Early Start and was not eligible for services under the Lanterman Act. They did not receive information about their right to appeal, such as the deadline to appeal, where to find advocacy assistance, or the appeal form. OCRA discovered that many other Early Start consumers also did not receive appeal information when they were found not to be eligible for services under the Lanterman Act.
On Saturday June 25, 2016 Scott Barron, Peer Advocate, was joined by regional office Voting Rights Advocate to prepare the Chinese SAGE self-advocacy group for the upcoming presidential election in November. The Chinese SAGE group is a self-advocacy group of young Chinese regional center consumers from across the Los Angeles area. The Vice President of Chinese Sage, Alex White, wrote the following statement: “We have spent time getting to know each other, attending trainings, and social events. We think it is important for Chinese SAGE members to now become good citizens in our community.
Anthony has significant medical needs that require the use of oxygen tanks and catheters for his tracheostomy tube. His durable medical equipment provider began sending incomplete deliveries of his equipment over several months and then suddenly stopped delivering any equipment. Anthony did not receive any notice that the delivery of the equipment would stop. OCRA advised Anthony to contact Medicare, his medical insurance, and ask them to assign a new durable medical equipment provider. Anthony’s parent contacted Medicare and immediately transferred the services to the new provider.
Joe contacted OCRA when he received an overpayment notice that said he owes Social Security more than $45,000. Although Joe has been a regional center consumer for most of his life, Social Security determined that his disability had ended because he earned too much money in certain months. Because Social Security had already paid him for all of those months, he was overpaid $45,000 in SSDI benefits. OCRA assisted Joe in completing forms to show that he had subsidies in his past employment that should have been considered when determining the total amount of his earnings.
For several months, Dustin experienced resistance from his Section 8 voucher landlord in making reasonable modifications to his apartment so he could continue to live safely and independently. OCRA sent Dustin’s landlord a demand letter explaining his disability and new health issues. The letter clarified how Dustin’s health concerns require railings to be installed at his apartment’s front steps and grab bars added to the inside of his shower.
Carl repeatedly received bills for a medical service which he believed his medical insurance should have paid. Carl has both Medicare and Medi-Cal. OCRA contacted the medical provider to make sure they had Carl’s correct insurance information and had properly billed. OCRA also told the provider that state and federal law prevents them from “balance billing” because it accepted Carl as a Medi-Cal beneficiary when it provided the medical treatment to him. OCRA discovered that the medical provider simply had the wrong address for Medicare and Medi-Cal.
After being discharged from the hospital, Julie could not attend school because her immune system was compromised and she had extensive medical needs. Once her health stabilized, her parents notified Julie’s school that she was ready for educational services in her home. The school district demanded that Julie return to the public school setting, threatening truancy action against Julie’s parents if she didn’t return. OCRA attended an IEP meeting to obtain educational supports and services in the home.
Ana’s IHSS social worker told her they were terminating her IHSS benefits completely, but did not send her a written notice of action. Ana’s IHSS provider continued to serve her, but had not been paid from July 2015 to December 2015, despite numerous calls and attempts to contact the county about the issue. OCRA agreed to assist Ana by using the advocate inquiry complaint process. OCRA sent the inquiry, noting the verbal IHSS termination with no written notice of action and no payments to the provider, and requested review of Ana’s case.
Owen is a young adult who attends junior college. He is a very talented computer artist and hopes to eventually get a job in computer graphics and be self-supporting. He was receiving SSI and signed up for the SSI Ticket to Work program with the Department of Rehabilitation. The Ticket to Work program allows recipients to postpone the SSI eligibility redetermination process during the time they are training for the work which will make them self-supporting. There was a typographical error in Owen’s Social Security number on the original DOR application.
After frequently arriving late to his day program, George and his parents wanted to change his transportation vendor. OCRA informed George’s parents of the regional center’s responsibility to provide transportation as written in his IPP. OCRA also informed George’s parents of the right to request a new transportation vendor and to review the referral packets that the regional center was sending to the proposed transportation agencies. George’s parents requested to change the transportation agency and to review the referral packets.