2019 Public Policy Platform

Goal 1: Stop abuse, no matter where and when it occurs. Improve Quality of Care.

  1. Develop legislative strategy clarifying the causation standard in nursing home death case citations and implementing recommendations from the May 2018 California State Auditor’s report Skilled Nursing Facilities: Absent Effective State Oversight, Substandard Quality of Care Has Continued (#2017-109).
  2. Engage in systemic advocacy to limit the use of restraint and seclusion in public and private schools, including public policy strategies if necessary.
  3. Conduct investigations and make recommendations to prevent and ensure reporting of abuse, neglect, or criminal victimization of people with disabilities including in facilities and programs serving individuals with disabilities.
  4. Develop a public policy strategy to address conditions and prevent abuse and neglect of individuals with disabilities in detention facilities and/or reduce rates of incarceration of people with mental health disabilities and facilitate successful diversion and reentry programs.

Goal 2: Stop discrimination, eliminate stigma, and protect civil rights.

  1. Develop public policy strategies to preserve federal and state access rights.
  2. Engage in advocacy to place a memorial at a burial site associated with a state developmental center or state hospital remembering those who lived and died in state institutions.
  3. Engage in systemic advocacy and represent individuals in mental health facilities whose civil rights have been violated, such as denial of assistive technology or dental care and failure to pay fair wages to state hospital residents.

Goal 3: End segregation. Increase community living options so people can live and fully participate in barrier-free communities of their choice with the services and supports they need to thrive.

  1. Engage in individual and systemic advocacy to protect consumers’ rights in the In-Home Supportive Services (IHSS) program, including in the following areas: Electronic Visit Verification (EVV), implementation of workweek limitation exemptions, sick leave, and inappropriate fraud investigations.
  2. Develop public policy strategies to increase programs and services to allow seniors and persons with disabilities to live at home rather than in institutions.
  3. Develop public policy strategies to ensure that suspended services for regional center consumers are restored such as social recreation and camping and/or loosen restrictions regarding the use of generic resources when those restrictions impose access barriers.
  4. Represent or engage in systemic advocacy to ensure that people have access to essential Lanterman Act services in-home and community-based settings.

Goal 4: Respect the autonomy, preferences, and choices of people with disabilities so they can be equal, passionate, and full participants in society.

  1. Engage in systemic advocacy to ensure accessibility of voter information and processes.
  2. Develop public policy strategies to provide protections to parents with disabilities.
  3. Monitor implementation of and develop a public policy strategy for informed consent and end of life decision making for people with disabilities in nursing and other long-term care facilities.
  4. Represent and engage in systemic advocacy for people with mental health or intellectual and developmental disabilities where there are violations of autonomy rights, such as involuntary mental health treatment, serial 5150 commitments, parenting rights, sexuality, gender identity, and medical decision-making.

Goal 5: Protect and advance basic human rights to health care, housing, and education.

  1. Develop public policy strategies to maintain and improve access to Medicaid and the Affordable Care Act.
  2. Represent students or engage in systemic advocacy to ensure that schools are providing individual education programs that promote academic rigor, social inclusion and inclusion in all aspects of school life on general education campuses.
  3. Develop state and local public policy strategies to increase affordable and accessible housing and to address housing discrimination and restrictions including land use and zoning restrictions and Not In My BackYard (NIMBY).

Goal 6: Ensure access to government benefits, transportation, and employment opportunities with competitive wages.

  1. Develop a public policy strategy to address policies that negatively impact persons with disabilities’ public benefits.
  2. Advocate for public policies that promote accessible transportation.
  3. Engage in public policy strategies to increase employment for persons with disabilities.

Goal 7: Increase access to culturally and language competent services that value disability, diversity, culture, and ethnicity of each individual. Ensure that all services are accessible to people with disabilities.

  1. Develop public policy strategies to address disparities in the developmental disabilities system including access to culturally appropriate services.
  2. Develop public policy strategies to ensure state and department public entity websites are accessible and remain accessible.

Goal 8: Ensure access to up-to-date knowledge and tools and advocates so individuals with disabilities can be effective self-advocates and access courts, administrative agencies, and legal services to defend and enforce their rights.

  1. Develop a public policy strategy to maintain and increase DRC core funding including Equal Access Funds.
 

Click links below for a downloadable version.

2019 Legislative Priorities (pdf)
2019 Legislative Priorities (rtf)