After successfully transitioning from a developmental center to community placement, Victor began attending a county special education high school transition program in accordance with the goals in his IEP. Victor initially did very well in his new program. However, following the school winter break, he experienced an illness and an increase in his aggressive behaviors. Victor had an inadequate school behavior plan, and as a result wound up missing months of school. OCRA represented Victor at a series of IEP meetings and requested additional assessments. Following a detailed transition
Reese had significant behavior issues when she lived in the community. The regional center eventually placed Reese in an IMD that was more than 150 miles away from her home community. The regional center notified OCRA of Reese’s IMD admission and provided OCRA with a copy of her comprehensive assessment. Reese stated clearly that she wanted to return to her community. While OCRA advocated for Reese to live in the least restrictive environment, the regional center attempted to relocate her to another IMD, which allowed outings into the community.
OCRA recently contributed to a community training forum that was attended by 100 medical professionals, social workers, and other service providers. OCRA is part of The Diversability Advocacy Network (DAN), a partnership made up of local organizations in northern California. DAN’s focus is to provide information regarding health care changes, the shift to managed care, and long-term services and supports (LTSS) in the local rural counties. DAN advocates on a systemic level for persons with disabilities and older adults to ensure that LTSS systems are accessible.
OCRA has worked closely with a large high school district over several years to educate families of transition-age regional center consumers about alternatives to conservatorship. The district representative shared that she has seen a shift in the attitudes of parents and staff about conservatorship as a result of OCRA’s outreach over the years. Parents and district staff shared that school psychologists speak of conservatorship as a routine or inevitable step for a young person with a disability.
Jocelyn has disability-related behavior incidents at school. Jocelyn’s teacher would send Jocelyn home early every day, which put her mother at risk of losing her employment. OCRA contacted the director of special education who was unaware that Jocelyn’s teacher was sending her home. The school district funded an independent functional behavior assessment by a qualified assessor and developed a positive behavior plan to assist Jocelyn with her behavior at school. Sending Jocelyn home will not be part of her plan.
All families must be prepared for their child to transition from the public school system into the adult world. The goal for any family is to ensure that their child is prepared for the future. For families with children with developmental disabilities it is very important to have the knowledge of what transition to adulthood means and what resources are available to help the child become as independent as possible.
Sean contacted OCRA after he went to pick up his medication prescription and found out he was no longer eligible for Medi-Cal benefits. OCRA assisted Sean in filing an appeal. The appeal stated that Sean had not received proper notice of the Medi-Cal termination and that even if the county determined that Sean was no longer eligible under his current Medi-Cal program, the county failed to review his eligibility for other Medi-Cal programs. OCRA negotiated with the county appeals specialist to show that Sean was eligible for Medi-Cal under the 250% Working Disabled Program.
Chin-Hae received Early Start services from the regional center before age three. When he turned three, his parents received a letter from the regional center telling them that he had aged out of Early Start and was not eligible for services under the Lanterman Act. They did not receive information about their right to appeal, such as the deadline to appeal, where to find advocacy assistance, or the appeal form. OCRA discovered that many other Early Start consumers also did not receive appeal information when they were found not to be eligible for services under the Lanterman Act.
On Saturday June 25, 2016 Scott Barron, Peer Advocate, was joined by regional office Voting Rights Advocate to prepare the Chinese SAGE self-advocacy group for the upcoming presidential election in November. The Chinese SAGE group is a self-advocacy group of young Chinese regional center consumers from across the Los Angeles area. The Vice President of Chinese Sage, Alex White, wrote the following statement: “We have spent time getting to know each other, attending trainings, and social events. We think it is important for Chinese SAGE members to now become good citizens in our community.
Anthony has significant medical needs that require the use of oxygen tanks and catheters for his tracheostomy tube. His durable medical equipment provider began sending incomplete deliveries of his equipment over several months and then suddenly stopped delivering any equipment. Anthony did not receive any notice that the delivery of the equipment would stop. OCRA advised Anthony to contact Medicare, his medical insurance, and ask them to assign a new durable medical equipment provider. Anthony’s parent contacted Medicare and immediately transferred the services to the new provider.